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Down syndrome: a coordinated care pathway

Adapted Down syndrome activity

Down syndrome is a common chromosomal condition. It requires regular medical follow-up and compassionate educational support to promote each child's development, health, and autonomy.

1. Multidisciplinary medical follow-up

The national diagnostic and care protocol (PNDS) recommends annual follow-up in a specialized centre to identify and treat frequent comorbidities: cardiac, hearing, visual, thyroid, or orthopedic disorders.

2. Development and education

Educational support focuses on language, motor development, school learning, and daily living skills. Methods are adapted to each child's profile, in a structured and encouraging setting.

3. Complementary therapies

  • speech therapy for communication and language;
  • physiotherapy and psychomotor therapy for motor skills;
  • adapted artistic and sports activities;
  • psychological support for families.

4. Toward autonomy and inclusion

With a coherent pathway between the centre, family, and healthcare professionals, young people with Down syndrome can acquire sustainable skills and actively participate in social and community life.

Reference source: Haute Autorité de Santé — Down syndrome (PNDS)

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